Being bound to my bed most of the time, I watch a lot of YouTube videos. Particularly vloggers because they bring me out of my own life for a little while and even let me live vicariously through them. I've been battling one chronic illness or another for most of my life. I'd be lying if I said I remembered what it was like to be a functional, able-bodied human in society. So, sometimes, when I watch these 100% healthy vloggers, it amazes me that they're able to get so much done in one day.
Anyway, the real reason my family and I did not like the nurse at the front of the room is because, when I finally got my diagnosis of POTS (Postural Orthostatic Tachycardia Syndrome), she still did not believe me, so she took it upon herself to contact a few of the doctors I've seen.
I was thinking about how I washed the dishes twice this week and immediately decided I wanted to share this victory, however small it may seem to the healthy, with all of you! Some of you are new here- Heck, I'm new here, so I'll provide you with a little background...
My sleep schedule at the moment is completely backwards. I woke up at around five in the evening and, as I'm typing this, it's 8:30 A.M. I'm barely even tired! With insomnia and sleep apnea, there's not much I can do about my awful sleep schedule considering I'm out of my medication. To help, I made a sort of "wind down" playlist on Spotify. It's not just for helping me get to sleep, though. It helps when random tachycardia from POTS hits, or if I'm just stressed out and need something relaxing to focus on.
My grandpa died not long after I got sick. He was battling medical problems of his own, far worse than mine. I was twelve at the time, maybe even thirteen, and, because I was so young, it’s getting harder and harder to remember him.
I have nothing to say. Okay, that’s not true. I’m sure there’s something rattling around in there (“there” being my brain), but, as of right now...nada. Zip. Zilch. This never used to happen to me. Up until a couple of years ago, I was overflowing with ideas to write about; stories to tell. After, what? fifteen years? of writing, it’s like I’m all tapped out.