I’m not gonna lie, you guys, I’m a little nervous! Usually, when my doctors prescribe a new treatment or test, I’m like, “Yeah, sure, whatever ya gotta do,” but with this… I don’t know, it just feels heavier. I suppose it doesn’t help that everyone I’ve talked to so far has commented on what a serious drug Methotrexate is. My doctor has assured me that combined with the folic acid and Remicade, I should be fine. The goal with all of this new medication is to help relieve my pain and maybe even reverse some of the damage that showed up in the CAT scans of my lower back.
Remember how I said it took ten years for this diagnosis? I wasn’t exaggerating. It has been untreated and undiagnosed for half of my life. Can you imagine the mess that creates in a person’s body? I don’t have to because I’ve been living with it, of course, but you get my point.
I’m also nervous about how my crappy veins are supposed to hold up now that we’re going to be adding Remicade every 6-8 weeks to my list of monthly infusions. If you don’t already know, I started iron infusions last summer after my hematologist (the one out of state) saw how awful my levels had gotten. Just another thing that fell through the cracks during our journey to getting answers… I did try oral iron supplements back then, but my body couldn’t tolerate them.
Anyway, now I’m on monthly iron infusions coupled with a bag of saline. My arms never cooperate, so the nurses at the infusion place tend to go for my hands these days. The idea of a port has already been mentioned on three different occasions, usually while one of the nurses is slapping my hand to bring up a juicier vein. You can see why I’m a little apprehensive to add even more needle pokes to my monthly schedule…
Overall, just a lot of uncertainty going around and, I have to say, I’m not a fan. This is why I don’t gamble.