Trigger Warning: Emetophobia mention.
Welcome to “Dear Diary”, a series where I talk about the little things going on in my life that don’t necessarily warrant their own individual posts. Please, feel free to do the same in the comments! So… What’s new?
I finally got a haircut yesterday (which was two Thursdays ago for you). Jeez, it’s been too long… It amazes me how taking off ten inches of hair can make me feel so much better. That ten inches of hair is currently on its way to Pantene Beautiful Lengths’ offices so it can be made into a wig. Since I’m bedbound, I obviously don’t get out much, which means haircuts aren’t a high priority for me. I usually wait until I have somewhere to be (in this case, the Dysautonomia International Conference) and/or can’t take it any longer. Seriously, have you tried showering with hair down to your buttocks? It takes too long for my tired, achy limbs and it’s just not a good time all around.
Below are before and after pictures. (Hover for image descriptions, click to enlarge.)
[A selfie of Dannie before the haircut. It falls a little past her chest.]
[A selfie of Dannie in the car after the haircut. Ten inches are gone, with it falling at the base of her neck.]
[A selfie of Dannie at home holding the cut off ponytail she’s donating to Pantene Beautiful Lengths.]
I’m so happy with the results! It took me a year to grow the ten inches I cut off. It’ll probably be another year before I get it cut again. This was my first time donating, by the way! I don’t know why I’ve never done it before… Big thank you to Tracey and Allie for suggesting it! And to my grandma for driving me. Also sending a thank you to my foggy brain for making me forget I got it cut, and scaring myself every time I look in the mirror.
Today, I woke up to vomit on my bedroom carpet, poop on the wee wee paper, and an upset Milo trying to tell me what happened. Unfortunately, dogs do not speak English, so I did not know there was a rash forming all over his underside until much later when my mom got home. I feel so incredibly awful for not noticing, but I essentially live like a vampire when I’m home (in the dark, as far away from the sunlight as possible), so I didn’t see it. Needless to say he was uncomfortable the entire day (not itchy, just couldn’t sleep) and Mom & I rushed him to the vet as soon as she saw it. Turns out it was an allergic reaction, to what we have no idea, and he was prescribed an anti-histamine. After the steroid shot, nausea med, and Benadryl, he was back to his old self when we got home, albeit yawning while playing with his toys.
Sometimes I think it was fate that we got Milo. If it’s not me going to the doctor, it’s him. He has joint problems, like I do, and now he’s on anti-histamines for allergic reactions, like I am, and he’s always running into things and stumbling over himself because of his crappy legs, like I do. Of course, he also has a swollen liver, chronic ear infections, pancreatitis, bladder stones, and who knows what else. Two peas in a pod, we are.
Other than rush Milo to the vet, I got a new shipment of turquoise howlite beads today, so I finished making bracelets for the conference. Slowly but surely checking things off of my list. Haircut, eyebrow waxing, bracelets, business cards, Velcro straps for my wheelchair, wheelchair gloves, Vogmask, and medication. I hope I have enough Lunesta to get me through… I’m running low. I might have to go without taking it for a couple of days before we leave.
I’m almost through two weeks on Midodrine and Propranolol! Haven’t started adding the second dose yet because I can’t seem to stay awake long enough in the morning to be able to take it. The goal is to have breakfast at 9 so I can take it, then do the second dose at 1 with lunch, and have a snack at around 5 when I add in the third dose, unless we happen to eat dinner early that day. However, today I woke up at 10 A.M. (early, compared to the beginning of the week), stayed in bed until 11:30, and only got out of bed because I realized Milo threw up. Didn’t end up taking all of my morning medication until 12:30 in the afternoon. My bad. No side effects that I can think of, by the way. My heart will race right after I take it, but that happens anyway, so I’m not concerned. I think it’s working? Who can tell anymore?
Next month, August, is my birth month! I still can’t fully wrap my head around the fact that I’m going to be twenty-one on the sixteenth. It seems like I’ve been waiting for my twenties my entire life, and now that they’re here, I’m disappointed. I am gradually “getting my life back”, so maybe I’ll feel differently 365 days from now. For the time being, this is where I am.
– Posting schedule: Tuesdays & Fridays @ 12 P.M.
– Made small changes to “About” page.